This was originally published in Busted Babymaker on March 26, 2008. The name ‘Doodles’ refers to their fraternal twins, Talia and Noah. This is posted with the permission of the author.
I apologize in advance for how horrifying this will be to read, particularly for those pregnant. I hate that my story will cause additional anxiety for others. I think it will be helpful for me to write out everything that happened though, as I want to make sure I always remember everything, even the worst moments.
So as most of my readers know, I’d been having pelvic pain for several weeks but we’d repeatedly checked my cervix, had ultrasounds, and everything appeared ok (I have also asked my doctor since if this may have been an indication of the impending abruption and she said possibly but there would have been no way of knowing that and they still couldn’t have fixed it). Usually this pain was only when standing/walking/changing position. So no, there wasn’t any warning of this.
Monday night, while sitting in bed, I felt pelvic pain even though I wan’t moving around or anything. This happened a few times but each time it went away after a few minutes. Around 8:30 (8:23 to be exact) it happened again and this time I felt my uterus harden, so I thought it was perhaps a contraction – because there was pain I wasn’t sure if it was Braxton Hicks or the real thing, but it didn’t hurt that badly. I started keeping track and told DH we’d call the doctor if I had more than 4 in an hour. I had two more, but wasn’t positive because they didn’t hurt that badly and I was laying on my side so it was hard to feel my uterus. (I kept changing position, drinking water, et cetera to see if that made it stop). When I felt the fourth one I got up to go to the bathroom, and told DH I’d call the doctor soon.
When I went to the bathroom there was bright red blood. I screamed “Oh my god” and DH came running. I think I went into shock immediately, as my legs started trembling and my teeth started chattering. We called the emergency number for our doctor’s office and my doctor called us back about 2 minutes later. I told her what was happening and she told us to go straight to labor and delivery. I asked if there was any way both babies would be ok and she said yes.
On the way to the hospital the cramping was getting worse, to where it actually hurt, and seemed to become more consistent. I still didn’t think it was contractions. I kept fearing what I thought was the worst, which was that I was miscarrying one of my babies. It didn’t even cross my mind that I’d lose both.
When we got to the hospital, the labor and delivery reception desk sent me upstairs to labor and delivery immediately (there were several people in the waiting area). We waited in a waiting room upstairs for about 5 minutes before a nurse came and got me. I went to the bathroom once while we waited and the bleeding was still what I would describe as “spotting” (i.e. only when I wiped, some clotting).
When we went back to a room I changed into a gown, and the nurse asked me to describe what had happened/was happening. A lot of time passed during which nothing really happened, and she said we were waiting for ultrasound to come. She and another nurse checked the doppler and after some trouble found what seemed to be two distinct heartbeats (after I showed them where we usually heard each heartbeat). I actually thought at this point that there was a possibility everything would be ok, even though when I went to the bathroom the bleeding was increasing.
Things quickly started getting worse as my cramping became much stronger. The monitor they’d put on me wasn’t picking up contractions, but it wasn’t in the right place, as it became very obvious these were contractions (2-3 minutes apart, some were so painful I was practically crying and screaming, which is extremely rare for me from pain). When the contractions became really bad DH started demanding to know when the doctor would come to the room (so far we’d been with the nurses only).
I was in the middle of a painful contraction when a new face leaned over me; it was the resident on call. She said she would examine me and see if she could figure out what was happening. First she did an ultrasound and it showed both babies, and I recall her saying that there was heart movement on both. Then she examined me. A moment later she came up and stood by me and took my hand and told me that she didn’t feel any cervix, and that she felt a big bag of water in my vagina, which meant that I was in labor, and that there wasn’t anything they could do to stop it.
I completely lost it, and started begging her to fix it and couldn’t they give me medicine to make it stop, at least until I was 24 weeks, as it was only 5 days away. She said that wasn’t how the medicine worked and there wasn’t anything they could do. I asked if they could try to save our babies and she told us at 23 weeks the NICU usually can’t do anything but she’d talk to them. They also said they were calling my doctor.
I don’t remember much between then and when my doctor arrived, although I think some time passed. I called my mom and she came right away, and DH called his parents. I was still having contractions every 2-3 minutes, some awful, some not as bad. Finally my doctor arrived. I asked again if she was sure there wasn’t anything they could do, if she could give me terbutaline or something, and she said that wasn’t even proven effective, and it was given more for contractions. She said they sometimes give magnesium but that it wouldn’t work in my situation. I asked again if they could save our babies since we were so close to 24 weeks and she said she wouldn’t speak for the pediatricians but that someone would be up to talk to us.
I was having contractions this whole time, and during a particularly bad one my doctor examined me to confirm the resident’s appraisal, and on each arm one nurse inserted an IV and another took blood. I barely remember any of this happening. Then my doctor asked if I’d like an epidural once my blood tests confirmed it was ok.
The pediatrician from NICU came to talk to us. At first we just wanted them to say they’d try and save our babies, but after talking to her things became more complicated. She said at 24 weeks they automatically do everything they can, and at 23 weeks or earlier they never do anything. She said between 23 and 24 weeks, we have to decide if we want them to do everything they can, or to just let nature take its course. I still can’t believe that with everything already happening we had to make this kind of decision.
At first we were leaning towards doing everything, but as we talked to the doctors more and got more information, we decided not to. The neonatologist told us that of babies born at this stage, approximately 50% will survive (assuming the neonatologists are present at delivery and do everything they can to resuscitate, etc..). Of the 50% that survive, she said most would have severe disabilities, meaning not physical therapy, etc., but blindness, deafness, cerebral palsy. Essentially she said most babies who were born at this stage and survived would never walk, run, see, go to school or anything of that nature. Not to mention, those odds are for singletons, and our doodles have measured a little small throughout this pregnancy, meaning we knew they’d likely be more at the barely 23 weeks size.
We just couldn’t face those odds and force that kind of life on our doodles for our own selfish reasons of wanting a baby so badly. I completely understand anyone who may made have or would make the other decision though. Even after we’d made our choice (which took several hours and multiple visits from the pediatrician, neonatologist, our OB and the nurse asking us if we’d decided yet since they needed to know before we delivered) I kept questioning it. I kept trying to sleep (I had been given the epidural at some point during this) and would look over at the baby bed in the corner. I kept worrying that they were going to be delivered and I’d hold them and they’d cry and look at me and then I’d have to let them die. I asked our OB though, and she said it was unlikely they’d be able to open their eyes yet at this stage.
Although I felt fine (they said to tell them if I felt lower pressure which would mean I was ready to deliver) my doctor checked me around 5 am and said I was pretty much ready. Luckily the labor was fairly quick and didn’t really hurt. I delivered Doodle A at 5:32 am on March 25. She weighed exactly 1 lb. I didn’t really start crying very hard until I heard them read the birth time. They took her to the baby bed and I couldn’t really see her. Doodle B came at 5:40 am, at 1 lb 1 oz. He actually made tiny little noises that sounded like crying, which was the worst thing I’ve ever heard in my life. There were only a couple though, thank god.
The neonatologist was there to clean them and wrap them up for us. She told us that Doodle A’s heart wasn’t beating when she was born – her cord had wrapped around her neck and she was somewhat bruised from that. She said that even had we decided beforehand to do everything we could to resuscitate, Doodle A wouldn’t have made it as she was too small to resuscitate, use the breathing tube on, et cetera. Doodle B, as we knew, was alive, but she said at his size and gestation she had never seen a white male baby make it even after doing everything. So ultimately we are at peace with our decision and know that at least this way they were peaceful and didn’t suffer. The neonatologist also had medication to give Doodle B to relieve any pain he might have felt before he passed. They watched him in the bed until his heart stopped, probably around 8 or 9 am.
After I delivered the placentas and everything I laid in the bed. We wanted to wait until they had both passed before we held them. My mom was there the whole time and my brother and his wife came at some point in the morning after Doodle B had passed. There were a lot of administrative questions (did we want an autopsy, want to talk to a social worker/chaplain, did we want to name them , did we want to bury them ourselves or let the hospital take care of them, etc.). We didn’t name them, but had them write Baby A and Baby B on their cards for our memory boxes — we got a memory box for each with a card with their footprint, size and date of birth, the tape measure they used to measure them, the little hats they put on them, et cetera. The hospital took pictures of them which they will send to us. They offered us pictures of us holding them but we declined. We also declined the autopsies since we knew what had happened, and we decided to let the hospital take care of the Doodles.
We held them for several minutes and got to look at them. Doodle A really did have my nose just like DH had joked from the ultrasound, and I also thought Doodle B had his nose. My mom agreed. They were so tiny – their heads were maybe the size of plums, their bodies barely larger than a barbie doll’s. They were the most beautiful things I’ve ever seen in my life. They were so peaceful.
We stayed in the room a while longer and just before they moved me upstairs to a regular room, we held them one more time to say goodbye. The most painful part for me was hearing DH cry so hard; he was so strong and wonderful throughout everything and took such good care of me. The only thing I could ever imagine worse than what happened would be losing him.
Yesterday around 11 am I moved to a regular room and have been here since. I hadn’t slept at all since 4am on March 24, and DH had slept only a little while (about 30 minutes). I kept trying to sleep yesterday but couldn’t. I was so scared I’d wake up and forget what happened and have to relive it all over again. My mom and brother and sister in law spent most of the day with us on and off at the hospital, and my best friend and her husband came to see us last night.
I saw my OB this morning. I need a Rhogam shot (since I am O-) and can go anytime I want. I think I will stay here for another few hours and rest. I’m a bit nervous to go home as we have baby stuff in the house, pregnancy books, a closet full of maternity clothes, and a guest room we painted bright green for the doodles. But I need to go home.
My doctor said I should take 4-6 weeks off work. I’ll probably do 4, but we’ll see. DH and I would like to get away somewhere to distract us, if I can travel. We were thinking maybe Paris, and hopefully my brother and sister in law and their kids could come meet us for part of the trip (they live in Berlin right now).
I keep focusing on administrative concerns, like cancelling doctor’s appointments (DH and my mom did most of that for me yesterday), cancelling my childbirth and breastfeeding classes (my OB said she’d have the hospital take care of that), cancelling our furniture orders which are supposed to be delivered this weekend, figuring out what to do with the shower gifts we’ve already received.
I also am continually thinking X hours ago…Before the labor started I said to DH “4 hours ago I was home in bed and thought everything was fine.”…Yesterday morning it was “5 hours ago the Doodles were still inside me”…Today it’s “24 hours ago they were still in the room with us.” There are also the thoughts of “Just this weekend I was thinking how close I was to third trimester”, and “I’m supposed to have a baby shower in less than 2 weeks.”
I know we will be ok, but right now it’s so hard to see how. I really just can’t picture going back to my life, to my job, to my house, and doing anything like I used to do. My entire life has revolved around getting and staying pregnant, and preparing for our Doodles. I don’t know what else to do.
As far as trying again, we can’t for a few months, and hopefully once we have the ok we’ll be ready emotionally. I was so anxious this whole pregnancy, it’s unfathomable to me how I’ll get through another after going through this. My OB talked to some high risk OBs/specialists, and she said before we try again they recommend I get labs done to rule out autoimmune/clotting issues, although she said that’s unlikely what the issue was. They also said it would be less risky if we had a singleton, so I suppose when we go back to the RE we will probably only have one embryo transferred if/when we do IVF or FET again. We have two snowbabies right now, and three additional covered IVF cycles (maybe 5, depending on whether Doodle B was considered a “Live Birth”, but I don’t really want to think about that for now).
We’re so grateful to all of our family and friends who have been taking care of us through this. Its so sad that this is causing pain for so many people, but it really helps to know there are so many out there who love us. At least it gives us a reminder of how wonderful people can be, and that the world isn’t all awful.
(Post Script) Busted Babymaker gave birth to a healthy baby boy a little over a year later. ’Toodle’ was born on June 17, 2009.
***Pregnancy Loss Week 2010***
Monday: Pregnancy Loss, Mothering and the Next Baby
Tuesday: The Birth of Sybella Eve
Wednesday: Remembering the Losses and Extended Family
Thursday: The Doodles
Friday: Pregnancy Loss and Trying Again and Pregnancy Loss-inspired Art